The year ‘s end is quickly approaching, meaning that my blog has been up and running for nearly sixteen months. Sixteen months of our journey has been charted. Unfortunately, I have been less than diligent to record every happening. Sometimes it seems to hard, and lately I find myself selfishly shamed by the progression of my mom’s Disease. In fact, it is for this very reason that I have put off writing this post.
While home for Thanksgiving I witnessed for the first time the uncontrollable jerking spasms in her arms. It prohibits her from holding drinks, food, etc. as she does not even realize they are occurring. An appointment with a neurologist has been made, and I am sure he will tell us it is all part of the progression of this Disease I am hating more and more each day. On the bright side, I am thankful that she doesn’t realize she has these unusual movements. Sadly, however, it is a reminder to all those around her , who love her so dearly, that she is getting worse.
For the past month, or so, my mom has been obsessed with something in the dining room at my parents house. One wall in that room is mirrored, and knowing she has been curious about her reflection for a while I naturally assumed it had something to do with that. Just recently I found out she has started spending several hours a day in the mirror in the dining room talking to herself. I don’t know if she knows it is her that she is talking to, but she must feel comfort from the familiarity of the face and voice.
I hesitated to share this. It is so personal, what I consider to be the most personal thing I have shared thus far in my journey with you over the past year. I know my old Mom. I know what a strong, self-sufficient, social woman she was. I think this was what she feared when she was diagnosed. Loosing control of herself.
While I am “Debbie Downer” most of the time when thinking about my mom, my Auntie Joye and Reid both brought up great thoughts that have humbled me – my mom may not be well, but she is, for the most part, happy, and certainly loved.
These are lyrics to one of my favorite new songs by Jim Brickman and Lady Antebellum:
Never Alone
May the angels protect you
Trouble neglect you
And heaven accept you when its time to go home
May you always have plenty
The glass never empty
Know in your belly
You're never alone
May your tears come from laughing
You find friends worth having
With every year passing
They mean more than gold
May you win but stay humble
Smile more than grumble
And know when you stumble
You're never alone
Chorus:
Never alone
Never alone
I'll be in every beat of your heart
When you face the unknown
Wherever you fly
This isn't goodbye
My love will follow you stay with you
Baby you're never alone
well
I have to be honest
As much as I wanted
I'm not gonna promise that the cold winds won't blow
So when hard times have found you
And your fears surround you
Wrap my love around you
You're never alone
Chorus
May the angels protect you
Trouble neglect you
And heaven accept you when its time to go home
And when hard times have found you
And your fears surround you
Wrap my love around you
You're never alone
Chorus
My love will follow you stay with you
Baby you're never alone
Oh Mary Virginia, this post left me in tears...thank you so much for your vulnerability. I can't imagine watching my mom go through so much...YOU ARE SO STRONG!! Know that I am praying for your entire family.
ReplyDeleteLove,
Lindsey
Mare, I love you so much. I cannot tell you how special it was watching those old home videos on Thanksgiving. I want you to know that that is exactly how I always think of your mom - over at the Martin's pool while we all swam and beat up on George. We had so much fun all together and those are some of my most cherished memories.
ReplyDeleteWhat a gorgeous song! I am looking it up on iTunes right now - can't wait to hear the music. Mare, I love you and am praying for you.
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